health

it was in the summer of 1995 that i first suffered an inflammatory condition; i had gone jogging through wakefield in the sun, despite having felt the sniffles coming on; soon, as well as a running nose, my throat became red and i found swallowing painful; in fact, i think my swallowing was permanently affected by that episode; i was given cortico-steroids to squirt up my nose; after a month or more, i recovered;

in early 1999, just as i was completing my computer science degree, my health collapsed; my mouth and throat became inflamed, and my intestines began to malfunction; i sweated every night (soaking the bed), my appetite vanished, and i lost several stones of weight;

a perturbation under the skin near my anus was dismissed by my gp; having become septic and been drained in the autumn of that year, it was revealed to me to have been an abcess, a common symptom of inflammatory bowel disease;

thanks to a colonoscopy soon after, i was diagnosed with crohn's disease;

i had suffered from a back problem since waking up after a beer festival in 1997-11; my dad had tried to steal a piggyback ride, when we were both quite inebriated; i had collapsed under the unexpected mass, landing on my rump; i hobbled about on that first morning, with a sharp pain near the bottom of my back;

the pain came and went, over the following months and years, and i became susceptible to shocks, such as walking into an unseen gap in a pavement, when i would stiffen in pain; i visited a doctor or two, and received some nice physiotherapy in the summer of 1998, from helen edwards at west park hospital in wolverhampton; but they were treating me blind;

while recovering in my hospital bed from that `excision and drainage' of my perianal abcess, with dying men groaning around me, i noticed my back feeling stiffer; this stiffness grew over the months, and then i went to my new gp, who referred me to a rheumatologist;

she had bad news for me; i was in the unlucky 5 percent of crohn's disease patients who also had ankylosing spondylitis;

for my back, i was advised to swim; but i never did; i have always found it difficult to exercise without something to throw around; for example, cross-country runs at school were always desperately dull, unless they involved dangerous paths that required my concentration;

i received some hydrotherapy, but then i was on my own;

in late 2001, i was still taking steroids and some other drug for my bowel; not the kick-ass dosage i had initially taken at the end of 1999, but enough that i wished i wasn't taking any; the dosage had been reduced over time, since the worst of my symptoms (oral ulcers, intestinal pain and blood) had receded;

as my consultant had recommended, i was still eating as i always had done; a bit less, i suppose, but all the same stuff; at this time, i remember being in the habit of making lovely thick banana milkshakes; they were tasty; however, while my mouth had a party every day, my bottom was not having such a good time; every morning, i all but shat my arse off (by which i mean that i suffered a protracted and painful evacuation); not a good start to the day (lest i give banana milkshakes too grave a reputation, i should mention that i had been suffering this fate long before it had occurred to me to make them);

i took a day off work to meet mum in birmingham; as we sipped wine at bacchus, she brought a book out of her bag; it was a copy of something john had been recommended by a colleague on the set of `peak practice'; it was called `eat right for your type'; i was happy to try something new, and it worked; the symptoms i had been suffering (including ulcers on the sides of my hips) improved dramatically, as i gave up bananas, cow products and wheat, amongst other things;

that relatively happy condition has survived to this day; i gave up the drugs in 2002; they say that more recent drugs would alleviate my remaining symptoms; i believe them, but i just don't like drugs;

my back remains stiff, but i'm happy with what i'm doing to manage it; having practised t'ai chi for a number of years, my exercise has taken a more active turn; now i walk and run, keeping my back and ass as strong as i can

blog entries
i rose early on sunday; even earlier than ma and pa, who were taking a train that morning; i had woken about an hour before, hot and bothered; i wandered around, helping pa with his computer and making tea, i suppose; i felt pretty rotten, but i put that down to lack of sleep;

but later i became cold and felt worse; the chilly air tumbling off every window in the house didn't help, so all the curtains were closed at about 14:00;

i occupied myself with `the phantom menace' before bed (i must have been ill); i threw up a little and then suffered a restless night with the trots; laundry in the morning; the south park movie in the afternoon, which really did me some good; i was crying with laughter;

there would have been more laundry this morning, but last night i remembered the drill; bog roll in the pants; well, not the roll exactly; but paper from it; ended up slinging the pants out of the back door; but no spoiled bed linen;

it's a good read, this, isn't it?

anyway, when i got downstairs, i discovered that the pants had been retrieved from their ignominious position near the outside bin; ma must have washed them for me; `that was quick' i thought; but no; she had thought i must have dropped them after doing my laundry, and had put them on the radiator to dry! that's right, mum; share the stink!

i did a little eating yesterday, which didn't hurt; i'm not back to solids yet, but i feel somewhat better;

the strangest symptom was that all my loose shit smelled of salmon; i'm accustomed to that smell after eating salmon, but not otherwise;

in other news, my fedora 10 won't hibernate now; it wakes as soon as it goes to sleep

addendum: this night, i had another christ college end-of-term dream; hugging two friends in the alway house senior common room; adam ormrod in the left arm and (i think) des lally in the right; and then i was about 5 rows behind prodip, fairly central, at end-of-term assembly; he was heckling the teachers; for my benefit, i think; and i was cringing with everyone else; but he was cool

00007e3f | 2008-12-09T11:02:48Z | -no-label- | -mt4-
another restless night, after an attempted vegetable biriyani from a packet, and some cod from the local chippy; that's what hunger does to you, kids; perhaps there was something bad in the batter; or perhaps i just wasn't ready for hardcore scran; it had been a long time since i'd used a chippy; the cod cost £3.30; it could have bought me for less;

ma has texted me to say that doctor jo recommends rice for my current illness; anyway, despite my nocturnal discomfort, i learned a few things from bbc radio 5; like this year will be 1 second longer; a correction to account for a slowing of the earth's rotation;

i dreamed of walking charlotte felman to cardiff high school this morning; it didn't look much like it, but i think that's what it was supposed to be; the left edge of the front of the building was more prominent than the right; a covered entrance, under which were parked construction vehicles; and a crane overhead; we approached the frontage from the right; charlotte looked as she did the last time i saw her (at gran and gramps' place), though in something like school uniform; i think that's all i remember; very vivid; quite nice

00007e56 | 2008-12-10T10:47:49Z | -no-label- | -mt4-
still poorly here; ma has the idea that she might have been keeping her tummy bug warm for me since returning from turkey in october, and that she gave it to me on the weekend; i don't know; she's coming home this lunchtime, stopping at the supermarket on the way; i've asked her for some sugar; sweets; fruit juice; that kind of thing; something to improve my spirits and make me feel a little stronger; i'm wondering what to have to eat when (if) i recover; top of the list at the mo are lentil shepherd's pie and the tofu garlic and ginger dish from the local chinese

00007e57 | 2008-12-11T10:23:38Z | -no-label- | -mt4-
a full week after watching star wars episode 1 while shivering on the sofa, i found myself on the same spot, watching episode 2, dehydrated with my gut all cramped up; i got some movement (and therefore relief) by massaging my gut; too bad i'd turned down mum's offer of peppermint oil when she set off for saturday's concert; i managed to pass some loose shit before bed, as well as throwing up the morning's pineapple and plums, before going to sleep with my painful gut;

my appetite has been returning slowly; nothing heard from my arse since that night; i've no energy, but i feel okay;

the peppermint oil idea had been given to ma by uncle billy, who had heard that it was good for irritable bowel syndrome;

caught humph's final ``i'm sorry i haven't a clue'' last night on bbc 4; it struck me for the first time how similar jeremy hardy's behaviour is to that of mark watson

00007e61 | 2008-12-17T10:52:56Z | -no-label- | -mt4-
i'm shitting very sanely now; better than i have in ages; after my illness, i'm left to wonder why;

i have thought of 4 things that might have chilled my gut; the first is the peppermint oil, taken after lunch and dinner; the second is the lack of food the gut had to cope with while i was ill; the third is a more specific version of the second scenario; perhaps a damaged area of gut was able to heal in the absence of food; the fourth scenario is perhaps the least likely; that i flushed something out of me with all that weird salmon shitting;

anyway, i hope i can keep it up

00007e6e | 2008-12-21T13:52:11Z | -no-label- | -mt4-